Check out these links for current information on all things related to neuroendocrine cancers!

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National & International Organizations

Find info here on carcinoid and NETs, doctors, conference presentations and more!

• Carcinoid Cancer Foundation (CCF)

• Caring for Carcinoid Foundation (CFCF)

• The NET Community

 Excellent site for information from doctors and survivors on many topics related to carcinoid/NET cancers.

• Carcinoid Cancer Awareness Network (CCAN)

• Carcinoid Neuroendocrine Tumor Society of Canada (CNETS Canada)

• American Cancer Society (ACS)
  

• National Cancer Institute (NCI)
  

  Part of the National Institutes of Health in Bethesda, MD.
  The official US government site for information, clinical trials, etc.

• Cancer.Net
  Oncologist approved cancer information from the American Society of Clinical Oncology

• Stand Up 2 Cancer

  National coalition group to raise funds for research for a cure to cancers of all types
  

• Cancer Hope Network

A survivor to survivor support network organization

• Hospice Net

 The online site for Hospice, an organization providing support to patients and families facing life-threatening illness.  Info included for patients, children, caregivers and bereavement

• Hospice Foundation of America (HFA)
  

Helping those who cope personally or professionally with terminal illness, death and the process of grief and bereavement.

• Office of Disability Employment Policy  (ODEP)  

• Job Accommodation Network (JAN)

JAN is a free consulting service designed to increase the employability of people with disabilities by (1) providing individualized worksite accomodations solutions; (2) providing technical assistance regarding the ADA and other disability related legislation; and (3) educating callers about self-employment options.  JAN can be accessed by phone at 800-526-7234 or at the website.

Additional Tools Available Online:

• ISI Booklet:  Neuroendocrine Tumors:  A Comprehensive Guide to Diagnosis and Management    Full text of the latest diagnostic and treatment guide for carcinoid and NETs.  A must read for survivors,  caregivers and your doctors.  Includes all tests needed for followup.

•  Inter Science Institute Testing laboratory site with comprehensive information on lab tests used with neuroendocrine tumor monitoring.  Check here for foods and meds to avoid before testing!

• e-Patient White Paper
  Article published to the web on the changes being brought to health care by the developing habits of patients to consult the internet when facing a difficult health challenge and the patient's role as partner in their healthcare.

• Cancer Survival Toolbox
  A must-have for any one touched by cancer...newly diagnosed, survivor or caregiver.  This set of cd's and a workbook is provided FREE by the National Coalition for Cancer Survivorship (NCCS).

• Association of Cancer Online Resources (ACOR)
  Messages boards for various cancers.  The Carcinoid list monitored by several doctors who provide answers to questions posed.  Good resource for connection to carcinoid & NET survivors & caregivers over the English speaking parts of the world.

• The Wellness Community
  Provides support, education and hope to cancer survivors and caregivers.  Online support groups available here.

• Angel Flight America &
  Corporate Angel Network
  Two sites who offer free transportation for cancer patients and a caregiver to distant treatment centers.

• Care Pages Sign Up Page
   Free service to keep in touch with friends and family while in the hospital or undergoing treatment.

• CaringBridge Website                     Another free service to keep in touch with friends and family while in the hospital or undergoing treatment.
  

• Facebook Pages
  There are now multiple facebook pages dedicated to NET and carcinoid survivors.  Most are "private" pages open only to members.  To gain membership in the page, log on to Facebook (you will need a Facebook account) and search for the page name.  When there, request membership by following the instructions.  Some of these include: 
• Carcinoid Coffee Cafe
• Cure Goblet Cell Carcinoid Cancer
• Lovable Lungnoids (Carcinoid/NET Lung Cancer Support)
• Carcinoid Cancer Foundation (CCF)
• Carcinoid Cancer Awareness
• Caring for Carcinoid Foundation
• Carcinoid NeuroEndocrine Tumour Society Canada
• Unicorn Foundation of Australia
• Carcinoid NeuroEndocrine Cancer Awareness
• Iowa Carcinoid Connection
• Zebra Zone
• ZAP  [for caregivers only!]