Check out these links for current information on all things related to neuroendocrine cancers!

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National & International Organizations

Find info here on carcinoid and NETs, doctors, conference presentations and more!

• Carcinoid Cancer Foundation (CCF)

• Caring for Carcinoid Foundation (CFCF)

• The NET Community

 Excellent site for information from doctors and survivors on many topics related to carcinoid/NET cancers.

• Carcinoid Cancer Awareness Network (CCAN)

• Carcinoid Neuroendocrine Tumor Society of Canada (CNETS Canada)

• American Cancer Society (ACS)
  

• National Cancer Institute (NCI)
  

  Part of the National Institutes of Health in Bethesda, MD.
  The official US government site for information, clinical trials, etc.

• Cancer.Net
  Oncologist approved cancer information from the American Society of Clinical Oncology

• Stand Up 2 Cancer

  National coalition group to raise funds for research for a cure to cancers of all types
  

• Cancer Hope Network

A survivor to survivor support network organization

• Hospice Net

 The online site for Hospice, an organization providing support to patients and families facing life-threatening illness.  Info included for patients, children, caregivers and bereavement

• Hospice Foundation of America (HFA)
  

Helping those who cope personally or professionally with terminal illness, death and the process of grief and bereavement.

• Office of Disability Employment Policy  (ODEP)  

• Job Accommodation Network (JAN)

JAN is a free consulting service designed to increase the employability of people with disabilities by (1) providing individualized worksite accomodations solutions; (2) providing technical assistance regarding the ADA and other disability related legislation; and (3) educating callers about self-employment options.  JAN can be accessed by phone at 800-526-7234 or at the website.

Video and Audio Presentations

• The Neuroendocrine Tumor Clinic Program at the LSU/Ochsner Medical Center, Kenner, LA

  Includes Video presentation of the NET program and features several doctors practicing there.         

• Dr. Jean Botha's YouTube Description of UNMC's new Carcinoid Clinic

 YouTube recording of Dr. Baum's presentation in Singapore in 2009, Part 1 of 2.

• Neuroendocrine Tumors: Diagnosis & Treatment w/ Peptide Receptor Radiotherapy(PRRT); Dr Baum (2of2)

 YouTube recording of Dr. Baum's presentation in Singapore in 2009, Part  2 of 2.

• 2008 Carcinoid/NETs Conference in Toronto, Canada

Additional Tools Available Online:

• ISI Booklet:  Neuroendocrine Tumors:  A Comprehensive Guide to Diagnosis and Management    Full text of the latest diagnostic and treatment guide for carcinoid and NETs.  A must read for survivors,  caregivers and your doctors.  Includes all tests needed for followup.

•  Inter Science Institute Testing laboratory site with comprehensive information on lab tests used with neuroendocrine tumor monitoring.  Check here for foods and meds to avoid before testing!
  

• e-Patient White Paper
  Article published to the web on the changes being brought to health care by the developing habits of patients to consult the internet when facing a difficult health challenge and the patient's role as partner in their healthcare.

• Cancer Survival Toolbox
  A must-have for any one touched by cancer...newly diagnosed, survivor or caregiver.  This set of cd's and a workbook is provided FREE by the National Coalition for Cancer Survivorship (NCCS).

• Association of Cancer Online Resources (ACOR)
  Messages boards for various cancers.  Carcinoid list monitored by several doctors who provide answers to questions posed.  Good resource for connection to carcinoid & NET survivors & caregivers over the English speaking parts of the world.
  

• The Wellness Community
  Provides support, education and hope to cancer survivors and caregivers.  Online support groups available here.

• Angel Flight America &
  Corporate Angel Network
  Two sites who offer free transportation for cancer patients and a caregiver to distant treatment centers.

• Care Pages Sign Up Page
   Free service to keep in touch with friends and family while in the hospital or undergoing treatment.

• CaringBridge Website
  Another free service to keep in touch with friends and family while in the hospital or undergoing treatment.