HEARTLAND CARCINOIDS & NETs
Serving Neuroendocrine Cancer Survivors & Caregivers
The North American NeuroEndocrine Tumor Society is a new professional organization whose purpose is to improve neuroendocrine tumor (NET) disease management through increased research and educational opportunities. To deliver the highest quality care to patients with neuroendocrine tumors, an interdisciplinary approach to disease management is important. NANETS members are available to answer your questions and help you develop these collaborative partnerships.
The 2012 NANETS Symposium: "NET Management Strategies: What's New & Relevant?"
is being held in San Diego, CA on
October 11-13, 2012.
The following organizations have posted some of the most comprehensive information available on carcinoid and neuroendocrine tumors. Get the latest on testing, recent developments, new research findings, etc.
To visit a site, just click on the organization's name. Their site will open in a new window!
Contact Eugene Woltering, MD FACP at LSU/Ochsner. Cell: 504-884-3555 or email him at firstname.lastname@example.org.
See the article published by Rudolf Arnold, MD on his PROMID study:
Interscience Institute has developed a new plasma assay for 5-HIAA! The new test makes it more convenient and less cumbersome to track your patients' 5-HIAA levels. Instead of patients having to collect urine over a 24 hour period and eliminate certain medicines and foods for up to 72 hours before the test, the new blood test requires only an overnight fast. Collection is required to be in a Z-tube provided by ISI. Contact them for more information at
Inter Science Institute - Contact Mia Tepper 944 West Hyde Park Blvd, Inglewood, CA 90302
Contact Us: Phone 800-255-2873 | 310-677-3322 | Fax: 310-677-2846
We are pleased to announce that the Association of Cancer Online Resources (ACOR) is now hosting a Listserv called Carcinoid-Dr.
This Listserv was activated in February 2006.
Members of this Listserv communicate with each other by sending e-mails to the Listserv, which then distributes the messages to all other members for responses.
Membership in this Listserv is limited to healthcare professionals.
Any healthcare professional who wishes to subscribe should send an e-mail to:
email@example.com describing their professional credentials, their reasons for joining, and providing their office address and phone number.
The following national and international renowned carcinoid/NET specialists are available to discuss and share their experiences with diagnostic, treatment and surveillance options and procedures for rare neuroendocrine cancers. Many of these specialists have up to forty years experience in managing these orphan diseases.
Dr's. Lowell Anthony, Kjell Oberg, Thomas ODorisio, Rodney Pommier, Manisha Shah, Michael Soulen, Aaron Vinik, Richard Warner, Bertram Widenmann, Eugene Woltering, and James Yao and more.
The physician groups that ACOR hosts are "private" lists. This means that the existence of this Listserv will not be advertised on the ACOR website, and new members can only be added to the Listserv by one of the managers. We invite your suggestions for ways to inform others about the existence of this mailing list. We anticipate that the participants will include both your colleagues with carcinoid expertise and other healthcare practitioners needing information to treat carcinoid patients.
The managers of this List are Linda Silversmith (NIH-science writer and spouse of a carcinoid patient), Mary Rahrick M.D. (pediatrician and carcinoid patient), and Pam Powell (a carcinoid patient and Florida support group leader).
Request Subscription in Carcinoid-Dr Listserv
(For healthcare professionals only)
Information and treatment possibilities for neuroendocrine cancers have expanded dramatically in recent years. Update your knowledge and get continuing education credits too!
Download this helpful guide for nurses caring for neuroendocrine cancer patients. The guide was originally developed in Oslo, Norway and has been edited and translated for nurses worldwide.
The guide includes the following chapters:
Disclaimer: We are patients and caregivers, not doctors. Any information shared should be used with caution, and is not a substitute for careful discussion with your medical doctors and other healthcare professionals.
This website made possible by gifts from our donors and a Sunflower Grant from:
Copyright Heartland Carcinoid/NETs Support Group. All rights reserved.