To Help You Help Your Patients...

More Information on Carcinoid and   Neuroendocrine Tumors at Your Fingertips!

 Join NANETS!

The North American NeuroEndocrine Tumor Society is a new professional organization whose purpose is to improve neuroendocrine tumor (NET) disease management through increased research and educational opportunities.  To deliver the highest quality care to patients with neuroendocrine tumors, an interdisciplinary approach to disease management is important. NANETS members are available to answer your questions and help you develop these collaborative partnerships.  The 2009 Conference is being held in Charlotte, NC on October 2 & 3, 2009.   Click here for more information on this organization.

The following organizations have posted some of the most comprehensive information available on carcinoid and neuroendocrine tumors.  Get the latest on testing, recent developments, new research findings, etc.

To visit a site, just click on the organization's name.  Their site will open in a new window! 

The Carcinoid Cancer Foundation

The Caring for Carcinoid Foundation

Carcinoid-NeuroEndocrine Tumour Society Canada "CNETS Canada"

Inter Science Institute

Neuroendocrine Tumors: A Comprehensive Guide to Diagnosis and Management  NEW 4th Edition (e-book)

Did you know?

There is a laboratory that will assay your patients' live tumor samples for chemotherapy resistance at no cost to your patient? 

Contact Eugene Woltering, MD FACP at LSU/Ochsner.  Cell: 504-884-3555 or email him at ewolte@lsuhsc.edu.

There is now documented evidence that treatment with Sandostatin has a tumor suppressive effect in addition to its control of carcinoid syndrome symptoms?

See the article published by Rudolf Arnold, MD on his PROMID study:

PROMID study results in the Journal of Clinical Oncology

Presentations by Dr. Arnold on his PROMID study.

Want to Connect to the Experts in Neuroendocrine Tumors?

It's Only a Click Away!

Online Discussion Group for
Healthcare Professionals

We are pleased to announce that the Association of Cancer Online Resources (ACOR) is now hosting a Listserv called Carcinoid-Dr. 

This Listserv was activated in February 2006.
Members of this Listserv communicate with each other by sending e-mails to the Listserv, which then distributes the messages to all other members.

Membership in this Listserv is limited to healthcare professionals. 

Any healthcare professional who wishes to subscribe should send an e-mail to:
carcinoid-dr-request@listserv.acor.org describing their professional credentials, their reasons for joining, and providing their office address and phone number.

The following national and international renowned carcinoid/NET specialists are available to discuss and share their experiences with diagnostic, treatment and surveillance options and procedures for rare neuroendocrine cancers. Many of these specialists have up to forty years experience in managing these orphan diseases.

Dr's. Lowell Anthony, Kjell Oberg, Thomas ODorisio, Rodney Pommier, Manisha Shah, Michael Soulen, Aaron Vinik, Richard Warner, Bertram Widenmann, Eugene Woltering, and James Yao.

The physician groups that ACOR hosts are "private" lists. This means that the existence of this Listserv will not be advertised on the ACOR website, and new members can only be added to the Listserv by one of the managers. We invite your suggestions for ways to inform others about the existence of this mailing list. We anticipate that the participants will include both your colleagues with carcinoid expertise and other healthcare practitioners needing information to treat carcinoid patients.

The managers of this List are Linda Silversmith (NIH-science writer and spouse of a carcinoid patient), Mary Rahrick M.D. (pediatrician and carcinoid patient), and Pam Powell (a carcinoid patient and Florida support group leader).