HEARTLAND CARCINOIDS & NETs
Serving Neuroendocrine Cancer Survivors & Caregivers
The carcinoid/NETs community has taken the zebra as its mascot because contrary to what doctors are taught in medical school...
The symptoms a carcinoid or NETs survivor presents often mimic other diseases and most doctors see only a handful of patients with carcinoid or NETs in their entire career. Our rare, hard to diagnose, type of cancer is found in so few people (estimated to be less than 5/100,000 population per year) that getting quality health care and information is difficult for patients, caregivers and medical personnel. The rarity of this condition also results in delayed diagnoses, few clinical studies, limited development of new drugs and treatments, and a limited number of true experts who have concentrated their medical and scientific careers on treating carcinoid and neuroendocrine tumors.
Though the cause of carcinoid is not known and a cure has not yet been found, increasing awareness of the disease has brought new and exciting treatment protocols that have added years of quality living for many survivors.
To learn more about carcinoid and neuroendocrine cancers and find sources for support and treatment options, contact any of the organizations listed in our links or email us at:
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Disclaimer: We are patients and caregivers, not doctors. Any information shared should be used with caution, and is not a substitute for careful discussion with your medical doctors and other healthcare professionals.
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