HEARTLAND CARCINOIDS & NETs

SUPPORT GROUP

 

 

Serving Neuroendocrine Cancer Survivors & Caregivers

in the Heartland of America!

 

Heartland Carcinoid/NETs Support Group
2901 Bluegrass Ct.
Columbia, MO 65201

ph: (573) 514-4089
fax: (302) 729-0582

Heartland_Carcinoids@yahoo.com

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Our Members

Meet Our Members. . .

     The Heartland Zebras 

 

 

 


Dianna Boomershine, Survivor

Date of Diagnosis:  March 24, 2006

Location:  Columbia, Missouri

 Email:   diannaboomershine@yahoo.com

Diagnosis:  Midgut carcinoid, metastatic to liver and other locations

My Story:  Click here to read my story!

My Doctors That I Would Recommend to Others: 

  • MY CARCINOID EXPERT:                                                                                                              Eugene A. Woltering, MD FACP                                                                                                        Neuroendocrine Tumor Clinic, LSU Ochsner Medical Center - Kenner, LA 
  • MY SURGEON:                                                                                                                                     Sung B. Kim, MD, Surgeon
    Upper Chesapeake Surgical Associates
    504 Lewis Street, Havre de Grace, MD21078
    Phone: 410-939-0700

Jim Boomershine, Caregiver

Survivor:  Dianna Boomershine

Location:  Columbia, MO

 Email:  jamesboomershine@yahoo.com

My Story:   Click here to read my story!


Michelle Petersen, Survivor                                     

Date Diagnosed:   July 27, 2007

Location:  Rural Western Missouri 

E-mail:   happydog@directv.net

Profile, Blog, Or Website:   http://www.facebook.com/michelle.petersen

 

Diagnosis:  Carcinoid Syndrome - No primary tumor found. My Carcinoid "blood markers" have been elevated in the past, yet no tumors have been found despite scans and exploratory surgery. One Octreotide Scan in 2/09 showed a "small area of uptake" in the terminal ileum and right lobe of liver. Unfortunately in an exploratory surgery in 3/09, no tumors were visible or palpable, so nothing was removed.
My Story:  Click here to read my story!

My Doctors That I Would Recommend to Others: 

  • Dr. Thomas O'Dorisio, University of IA, Iowa City, IA. He is my "carcinoid expert" and he is the one who diagnosed me in July 07. 
  •  Dr. Richard McKittrick, Kansas City Cancer Centers South. Kansas City, MO. He is my "local" oncologist and he's wonderful. Very willing to work with and listen to the carcinoid "experts".
  • Dr. Mike Zaruba, Auburn, NE. An exceptional primary care doctor who is now very experienced in testing for Carcinoid and treatment.
  • Dr. Jean Botha, Nebraska Medical Center in Omaha, NE. Absolutely incredible and talented liver, bowel and neuroendocrine surgeon.

Linda Hickam, Survivor

Date Diagnosed:   October 14, 2005

Location:  Wichita, KS

Email:   mickam@sbcglobal.net

Diagnosis:  2005 Classic Left Bronchial Carcinoid 1.8x1.5x1.3 cm (Less than 1% MIBI well differentiated neuroendocrine tumor- i.e. typical Chromogranin & Synaptophysin positive) ; 2007 Right Middle Lobe Carcinoid confirmed by bronchial biopsy. Later when the lobe was removed, they couldn't find the carcinoid tumor. Presently - no known tumors.

My Story:  Click here to read my story!
My Doctors That I Would Recommend to Others:  
  • Thomas M. O'Dorisio (endocrinologist)                                                                                           University of Iowa Hospitals and Clinics,  Iowa City, IA



Alicia Eagan, Survivor

Date Diagnosed: September 17, 2008

Location:  Arapaho, OK

E-mail: alicia46eagan@yahoo.com

Diagnosis: Carcinoid syndrome; 23 mets in the liver (originally),
primary in foregut

My Story:   Click here to read my story!

 My Doctors That I Would Recommend to Others:

  • Dr Jean Botha, MD: Carcinoid Clinic
    University of Nebraska Medical Center, Omaha, NE
  • Dr Michael L Zaruba, MD
    Family Practice and involved the Carcinoid Clinic at UNMC
    For pre-surgery care and most important for after surgery care. Call me for more info
    Auburn Family Health Center, Auburn, NE
  • Dr Jean L Grem, MD: Carcinoid Clinic Oncologist
    The Nebraska Medical Center,  Omaha NE

 

Terry J. Yake, Survivor                                        

Date Diagnosed:  February 8, 2006

location:   Overland Park, KS

E-mail: tyake@kc.rr.com

Diagnosis:   Islet cell tumor [5.3x5x8 cm] on the pancreas head, mostly non-productive, displays some characteristics of a glucagonoma.  Liver mets estimated to be causing a 10-15% tumor burden with the largest lesion 1.7 cm and numerous smaller ones.  No detected mets elsewhere.

My Story:  Click here to read my story!

My Doctors That I Would Recommend to Others:  
  • Thomas M. O'Dorisio, MD,  Endocrinology                                                                                                       University of Iowa Hospitals and Clinics, Iowa City, IA 

  • Stuart W. Hinton, MD  Medical Oncology & Hematology                                                                           Kansas City Cancer Centers, Shawnee Mission, Kansas

 


 

Charlotte Brown, Survivor

Date Diagnosed:  2005

Location:   Lenexa, Kansas

E-mail:   lotta@everestkc.net

Diagnosis:  2005 - Carcinoid Cancer (2 of 3 lymph nodes in lung) primary unknown
Adenocarcinoma 2005 (top lobe of lung removed)
Transitional Cell Carcinoma 2004 (right kidney removed)
Cervical Cancer 1968 Hysterectomy

 My Story:  Click here to read my story!

My Doctors That I Would Recommend to Others:

  • Thomas M. O'Dorisio, MD, Endocrinology                                                                                               University of Iowa Med Center, Iowa City, IA
  • Jean Botha, MD, Carcinoid Clinic
    University of Nebraska Medical Center, Omaha, NE
  • Richard S. Hart, MD FACG, Gastroenterology                                                                                Kansas City, MO/Overland Park, KS


Lynne Elder, Survivor

Date Diagnosed:    April 25, 2008

Location:  Kansas City,  MO

Email:   lelder@kc.rr.com

Diagnosis: Carcinoid Cancer, Primary: Ileum (small intestine), Extensive liver metastasis to both lobes

My Story:   Click here to read my story!

My Doctors That I Would Recommend to Others:

  • Robert J. Belt, MD,  Medical Oncology & Hematology                                                                           Kansas City Cancer Centers, Shawnee Mission, Kansas
  • Jean Botha, MD, Carcinoid Clinic                                                                                                                   University of Nebraska Medical Center, Omaha, NE
  • Michael L Zaruba, MD
    Family Practice and involved the Carcinoid Clinic at UNMC
    For pre-surgery care and most important for after surgery care                                                      Auburn Family Health Center, Auburn, NE

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Heartland Carcinoid/NETs Support Group
2901 Bluegrass Ct.
Columbia, MO 65201

ph: (573) 514-4089
fax: (302) 729-0582

Heartland_Carcinoids@yahoo.com